Wellness. Support. Awareness.
Committed to enriching the quality of life of those living with scleroderma in Atlantic Canada
Support
Providing financial, emotional, motivational, educational, and social support to those living with scleroderma and their caregivers in Atlantic Canada.
Education
Providing education for patients, caregivers, health care professionals, and health care students to increase understanding and awareness of scleroderma.
Awareness
Spreading awareness and educating the public about scleroderma, a rare autoimmune disease, which has no known cause and no known cure.
Research
Advocacy
Engaging with medical professionals, government, and media to advocate for those living with scleroderma in Atlantic Canada.
What is scleroderma?
Scleroderma is a rare, progressive, and chronic autoimmune connective tissue disorder that causes excess collagen accumulation. “Sclero” means “hard” and “derma” means “skin”. But hardening skin is just one of many difficult symptoms that those living with scleroderma can experience.
- Quick Links
- Scleroderma Handbook
- About Scleroderma
- Resources
Upcoming Events
Click on an event for more details.
NB and PEI Meetup | Saturday, October 19 | Five Bridges Bar & Grill | 121 Pineglen Rd, Riverview, NB | 12pm
We invite those living with scleroderma, along with their families and caregivers, to join us! Come enjoy good food, learn from guest speakers, and share some laughs with us!
Our lineup of speakers:
Mary Ellen Makhlouf, entrepreneur and creative strategist, will explore harnessing AI (artificial intelligence) to offer day-to-day support to individuals living with scleroderma, specifically in meal planning and self-advocacy.
Dietician Cassandra Burton will talk about the relationship between diet and scleroderma, providing practical tips and insights for better health.
Integrative Breathing Therapist and Yoga Teacher Jennifer Snowdon will address the importance of breath, highlighting techniques to enhance well-being.
Please RSVP by sending us an email – [email protected]
