About Us
Who We Are
Scleroderma Atlantic is committed to enriching the quality of life of those living with scleroderma through support, education, awareness, research, and advocacy.
Our Why
We don’t just support the scleroderma community; we’re part of it. Some of us are patients, while others have witnessed loved ones coping with the challenges of this disease. We share a common ‘why’—a genuine love for this community and an unwavering hope for its future.
Mission
To enrich the quality of life of those living with scleroderma in Atlantic Canada
Values
Availability, Collaboration, Confidentiality, Cooperation, Inclusivity, Professionalism, Respect
Vision
Creating an environment where the Atlantic scleroderma community can thrive.
Our Journey
1989
The origins of Scleroderma Atlantic began when Mary Beth Clark started hosting scleroderma support groups through the Arthritis Society in 1989.
2000
In 2000, Mary Beth went on to become a founder of Scleroderma Canada.
2010 - 2013
In 2010, Halifax hosted the Scleroderma Canada conference. This conference brought dedicated regional volunteers together who launched the Scleroderma Society of Nova Scotia, which was incorporated in 2013.
2020
In May of 2020, the society undertook a large expansion to form Scleroderma Atlantic. Our society is committed to providing education, advocacy, support, and resources to all of the Atlantic Provinces which include Nova Scotia, New Brunswick, Prince Edward Island, and Newfoundland and Labrador.
2022
In 2022, a part-time employee was hired to streamline operations and strengthen our efforts to support the scleroderma community in Atlantic Canada.
2023
In March 2023, Scleroderma Atlantic earned registered charity status with the Canada Revenue Agency. This milestone allows us to issue tax receipts, accept donations through CanadaHelps, and pursue grants to expand our programs and services across the region.
2024
In August 2024, Scleroderma Atlantic hosted the Scleroderma Canada national conference in St. John’s, NL
Today
Strength & Optimism
We’re proud of our accomplishments in supporting the scleroderma community and look forward to making even greater strides in the years to come.
Our Board Members
Jason Doucette
President, Executive Board
president@sclerodermaatlantic.ca
Jason Doucette is President of Scleroderma Atlantic and past president of Scleroderma Canada. He has been involved with the organization since 2013. Jason volunteers his time and efforts in memory of his mother, Linda, who passed away with scleroderma in 2012.
Michelle Richard
Vice President, Executive Board
vp@sclerodermaatlantic.ca
Michelle Richard is a past president of Scleroderma Canada. While in her 30s, she was diagnosed with diffuse systemic scleroderma.
Michelle strives to create more awareness of the disease and to provide advocacy for those living with scleroderma.
Theresa Henneberry
Treasurer, Executive Board
treasurer@sclerodermaatlantic.ca
Theresa Henneberry is Treasurer of Scleroderma Atlantic. She has been involved with the organization since its inception and believes in its core values and mission. Theresa volunteers in memory of her mother, Marie, who passed away with scleroderma in 2007.
Suzette Belliveau
Secretary, Executive Board
secretary@sclerodermaatlantic.ca
Suzette Belliveau is Secretary of Scleroderma Atlantic and has supported the organization for over 10 years through volunteering, event emceeing, participation in Make a Move for Scleroderma, and community advocacy.
Stephanie Adshade
Administrative Manager
info@sclerodermaatlantic.ca
Stephanie Adshade is Scleroderma Atlantic's part-time Administrative Manager. She has also volunteered with the organization since her daughter was diagnosed with scleroderma in 2017 and continues to support its programs and events.
Jessie Ferguson
Director
Wanda Hall
Director
Carolina Mancipe
Director
Barb Carter
Provincial Representative, Prince Edward Island
carters125@hotmail.com
Cindy Christopher
Provincial Representative, Newfoundland and Labrador
cindychristopher0@gmail.com
Patricia Worthington-LeBlanc
Provincial Representative, New Brunswick
worthington.patricia@gmail.com
Mary Beth Clark
Provincial Representative, Nova Scotia
463mbmk@gmail.com
Get in Touch
Call Us
902-702-0145
1-888-331-3266
Email Us
info@sclerodermaatlantic.ca
Mail Us
PO Box 31102 Gladstone
Halifax, Nova Scotia
Canada B3K 4P0
Become a Sponsor
Scleroderma Atlantic is a volunteer-driven organization dedicated to improving the quality of life for people living with scleroderma across Atlantic Canada through support, education, awareness, advocacy, and research.
Our work would not be possible without the generous support of sponsors and community partners who believe in our mission and the people we serve.
Many Thanks to All of Our Sponsors
Partner With Us
We are proud to collaborate with organizations, businesses, and community leaders who share our commitment to compassion, awareness, and better health outcomes.
Interested in Becoming a Sponsor?
We would love to connect with you. To learn more about sponsorship opportunities or partnership options, please contact us:
- 902-702-0145
- info@sclerodermaatlantic.ca
Together, we can make a lasting impact.
