Personal Stories

Meet Others & Hear Their Stories About Life with Scleroderma

Claudine’s Story

I’ve been living with scleroderma for 24 years. In that time, I’ve learned that one of the hardest parts of this disease isn’t just the symptoms—it’s

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Rachel’s Story

I was diagnosed with scleroderma around 1991, but the journey began long before that. I experienced symptoms during my adolescence, such as digestive issues that

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Selina’s Story

June 5, 2025 In October 2007, life took an unexpected turn for me. It started with subtle signs—fatigue and swelling in my hands that made

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Margaret’s Story

May 5, 2025 In 2008, I received my diagnosis of scleroderma, but the journey began long before that. I had been experiencing symptoms such as

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Kathleen’s Story

March 31, 2025 In 2006, my life changed forever. It all began with sore joints and mysterious bruises on my arms. After six months of

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Tya’s Story

Feb 2, 2023 My name is Tya Broussard. I live in Nova Scotia. My journey with health struggles started back in 2009 when I was

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Rylan’s Story

June 20th, 2022 My name is Rylan and I am 15 years old. When I was 7, I was diagnosed with two incurable rare diseases:

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Kevin’s Story

April 18, 2022 My name is Kevin Collins and I am from Hare Bay, Newfoundland. I had been experiencing symptoms since the fall of 2016

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Katie’s Story

June 10, 2021 “In 2017, at the end of her second year of university, Katie got sick, like, really sick. After countless doctors appointments and

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Michelle’s Story

Jan 3, 2022 I am Michelle Richard. I have been living with scleroderma for the past 21 years. In the beginning, my symptoms were pretty

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Kim’s Story

April 2, 2022 My name is Kim Fortin and I am from Aylesford, Nova Scotia. This has been my personal experience living with scleroderma. My

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