March 31, 2025

In 2006, my life changed forever. It all began with sore joints and mysterious bruises on my arms. After six months of discomfort, I finally decided to consult my doctor, seeking answers to my symptoms.

Within just two days, I found myself sitting in a dermatologist’s office. The diagnosis came swiftly: Morphea Scleroderma and Lichen Sclerosis. From that moment, my life became a whirlwind of treatments, medications, and surgeries. For the past ten years, I’ve been on an infusion drug that has significantly alleviated my daily pain, but the road hasn’t been easy.

In the initial phase of my journey, I experienced depression. The uncertainty of my condition weighed heavily on me, and I sought help from a therapist. Coping with the unknown—especially regarding my life expectancy—was a challenge.

One of the most difficult aspects of living with scleroderma is the guilt I feel when I have to cancel plans, call in sick, or let someone down because of my pain. It’s a burden that often adds to the emotional toll of the disease.

I want others to understand that scleroderma is often an invisible struggle. As someone who doesn’t outwardly appear ill, I hope people realize that pain doesn’t always manifest visibly. Diseases and disorders can be debilitating, even when they aren’t apparent. Please don’t judge based on appearances; the reality is that every day is a battle.

Lastly, I want to remind anyone who is struggling that you are not alone. There is a community out there ready to support you. Together, we can share our experiences and find strength in community.