Resources
Support Resources
It is Scleroderma Atlantic’s objective to provide up to date and relevant information and helpful resources for the scleroderma community.
These resources are of primary interest to those living with scleroderma, caregivers, family members, medical professionals, healthcare students, and those with an interest in scleroderma.
This page features links to a variety of external resources as well as Scleroderma Atlantic resources.
The information and resources included on this page do not constitute medical advice. Always discuss any changes to your treatments or medications with your doctor first.
Claudine’s Story
I’ve been living with scleroderma for 24 years. In that time, I’ve learned that one of the hardest parts of this disease isn’t just the symptoms—it’s
Rachel’s Story
I was diagnosed with scleroderma around 1991, but the journey began long before that. I experienced symptoms during my adolescence, such as digestive issues that
Selina’s Story
June 5, 2025 In October 2007, life took an unexpected turn for me. It started with subtle signs—fatigue and swelling in my hands that made
The David Shea Fund
Scleroderma treatments can often lead to difficult, unexpected expenses for items such as medications, treatments, and travel to appointments. It is recognized that expenses such as these can place a significant burden on scleroderma patients to the point where they opt out of recommended treatments.
To assist with these financial hardships Scleroderma Atlantic has established a patient support program in memory of David Shea.This fund provides financial assistance to individuals living with scleroderma who incur expenses related to the treatment of scleroderma and/or its related symptoms.
Multimedia Resources
Understanding Hormonal Health
Understanding how hormones can play a role in the management of Scleroderma.
Nourishing Diets: Gut Health 101
A part of the Scleroderma Atlantic Nourishing Diets series, this webinar focuses on gut health for those living with Scleroderma.
Nourishing Diets: Nutrition 101 for People with Scleroderma
This webinar shares the basics of maintaining good nutritional health for those living with Scleroderma.
Research Highlights
Treating Mild ILD Research From Dr. Hoa
Systemic sclerosis (SSc) is a rare autoimmune disease characterized by various degrees of skin fibrosis and internal organ involvement. Interstitial lung disease (ILD), or pulmonary
Establishing the Individual Immune Identity Card of Scleroderma Patients
At the request of several provincial scleroderma (Scl) associations, I am pleased to provide an overview of recent research carried out under the University of
Spin-Share Platform: How To Register
Supporting people living with scleroderma from around the world by providing rehabilitation and psychosocial online programs free-of-charge. To have access to Spin Online toolkits, login
Patient Support Resources
The Spoon Theory & How it Helps Explain Energy
Life with scleroderma can be exhausting. It can be difficult to understand how energy is affected by the disease. The Spoon Theory was originally created
CREST – Symptoms of Limited Scleroderma
Are you wondering if you might have limited scleroderma? Watch our short-clip video about the symptoms.
Make a Move For Scleroderma 2022
Special thanks to our incredible participants, sponsors, volunteers and more. We appreciate you. With your support, we were able to make this year’s events a
